New Canaan Library will host an informative session featuring Fayga Brisman Taylor and Lynn Hagerbrant from the Michael J. Fox Foundation (MJFF), focusing on groundbreaking advancements in Parkinson’s disease (PD) research. The event, set for [insert date], will be available both in-person and via Zoom, offering insights into the latest therapeutic developments and the significant strides made through the Parkinson’s Progression Markers Initiative (PPMI).
The Michael J. Fox Foundation, established in 2000 following Michael J. Fox’s public revelation of his 1991 Parkinson’s diagnosis, has become a pivotal force in the quest for a PD cure. The foundation aims to accelerate the development of improved therapies for the approximately six million people globally affected by Parkinson’s.
Speakers and Their Contributions
Fayga Brisman Taylor, Senior Associate Director of Advancement at MJFF, plays a critical role in driving the foundation’s mission. Taylor’s work involves developing and implementing engagement strategies to support MJFF’s ambitious research goals. Her efforts ensure that the foundation secures the necessary funding to sustain its extensive research initiatives aimed at finding a cure for Parkinson’s.
Lynn Hagerbrant, Co-chair of the MJFF Patient Council and Co-founder and Chairman of the Board of Parkinson’s Body and Mind, brings a unique perspective to the event. With a background in nursing and pharmaceutical industry experience, Hagerbrant was diagnosed with PD in 2010 and also cares for her mother, who is living with the disease. Her advocacy and personal experience provide valuable insights into the challenges and advancements in PD research and patient care.
The Renaissance in Parkinson’s Research
During the session, Taylor and Hagerbrant will discuss the renaissance in Parkinson’s research and therapeutic development. A significant focus will be on the landmark MJFF-sponsored PPMI. This initiative aims to identify biomarkers of Parkinson’s disease progression, which are critical for developing new therapies and potentially finding a cure. The PPMI has been instrumental in changing the landscape of PD research by providing a wealth of data and resources to the scientific community.
Event Details and Registration
The event will take place at New Canaan Library and will also be accessible via Zoom for those who prefer to attend virtually. Attendees who wish to join online should indicate this preference in the “notes” section of the registration form. The library encourages early registration to ensure participation, whether in-person or online.
This event represents a valuable opportunity for the New Canaan community to learn about the latest developments in Parkinson’s research from two leaders in the field. The Michael J. Fox Foundation’s commitment to advancing PD research and improving patient outcomes continues to inspire hope and progress in the quest for a cure.
For more information and to register for the event, please visit the New Canaan Library website.
Michael J. Fox: A Journey with Parkinson’s Disease and Ongoing Advocacy
Michael J. Fox, renowned for his roles in “Back to the Future” and “Family Ties,” has become an emblem of resilience and advocacy since his Parkinson’s disease (PD) diagnosis. Fox was diagnosed with young-onset Parkinson’s disease in 1991 at the age of 29. For nearly a decade, he kept his condition private while continuing his acting career. In 1998, Fox disclosed his diagnosis to the public, significantly raising awareness about the disease.
Early Diagnosis and Career Impact
Fox’s diagnosis came at the height of his career. Initially, he struggled with the realities of living with a chronic, degenerative disease while maintaining his professional life. The early symptoms, such as a tremor in his pinky finger, were a harbinger of the challenges ahead. Despite these difficulties, Fox continued to work in television and film, eventually transitioning to roles that accommodated his condition.
The Michael J. Fox Foundation
In 2000, Fox took a significant step in his advocacy journey by launching the Michael J. Fox Foundation for Parkinson’s Research (MJFF). The foundation quickly became a leading force in the search for a cure, focusing on funding research and development of improved therapies. MJFF has since invested over $1 billion in Parkinson’s research, becoming the largest non-profit funder of Parkinson’s research worldwide.
Living with Parkinson’s: Fox’s Ongoing Battle
Fox’s journey with Parkinson’s has been marked by both triumphs and setbacks. He has undergone multiple surgeries, including a procedure to remove a benign tumor from his spine in 2018, which temporarily impacted his ability to walk. Despite these challenges, Fox remains a vocal advocate for PD research and maintains an optimistic outlook.
Fox has openly shared the progression of his disease and its impact on his daily life. His candidness about the physical and emotional toll of Parkinson’s has been instrumental in destigmatizing the condition and fostering a better understanding of the disease.
Recent Developments and Current Status
In recent years, Fox has scaled back his acting roles due to the increasing severity of his symptoms. Nevertheless, he continues to make public appearances, deliver speeches, and participate in foundation events. His memoirs, including “No Time Like the Future: An Optimist Considers Mortality” (2020), provide a deep, personal look at his life with Parkinson’s and his philosophy on living with chronic illness.
Fox’s advocacy work remains tireless. He continues to inspire millions by participating in fundraisers, supporting legislative efforts for increased research funding, and promoting initiatives like the Parkinson’s Progression Markers Initiative (PPMI). His foundation’s work on PPMI, which aims to identify biomarkers for PD, is groundbreaking and has the potential to revolutionize the understanding and treatment of Parkinson’s disease.
Legacy and Impact
Michael J. Fox’s journey with Parkinson’s is not just a story of personal struggle; it is a testament to the power of advocacy and the impact one individual can have on public health. His openness, perseverance, and dedication to finding a cure have provided hope to millions affected by Parkinson’s disease. Through his foundation, Fox has ensured that the search for a cure continues with vigor, making significant strides in research and patient care.
Fox’s work has transformed the landscape of Parkinson’s research and continues to inspire and mobilize a global community committed to finding a cure.
